In the past month, the Erie area has seen a lot of purple with the #AJO Pay It Forward movement. It's since spread world-wide, but others with epilepsy say, there's still not enough attention being given to the disease.
"I've had epilepsy for over 15 years, and not a lot of people know what it is," said Kaitlyn Slomski, founder of The Epilepsy Project. "It's really coming to light with the whole AJO thing and Alyssa O'Neill, and we loved her, but a lot of misconceptions still remain."
Slomski said she started the organization after seeing just how little local support there was for the disease.
"My whole life, people have said, 'you don't have epilepsy,' 'you don't fall on the floor,' and then I have to really tell them that yes I do, I have epilepsy, I have to take medicine three times a day."
Seeing the awareness being given to The Epilepsy Project, with all the purple, those with the disease said it's making all the difference.
"Knowing that they're reaching out to the community, makes it really good," said Nancy Gemelli Griffey, an epilepsy patient. "It's nice to know and I'm glad that now I'll be a part of it."
"I met several people that I didn't even know had this disorder until recently and it's very reassuring to know that other people are there like yourself," said Brenda Youmans, an epilepsy patient.
The Epilepsy Project is going to be painting Erie purple in November, as part of Epilepsy Awareness Month.
Those like Griffey hope it'll bring light to what she calls "an invisible disease."
"I hope that not only people that have the disease, that have epilepsy, I hope that it brings a lot of their friends, a lot of their family into it so they'll understand what we're dealing with."
In 2014, the group will be holding seizure first aid workshops throughout the community.